"If you have [my] reaction, you are on your own. The government won't help you. The drug companies won't help you. Your medical teams will have no idea what to do with you. Financially you will be on your own. "
"We are people. Struggling, hurting and feeling ignored as well as dismissed.. We are feeling alienated from others when we should be getting the help we deserve. I share this to make others aware. So no one else has to go through what we are going through. Sending love and awareness. And hope for compassion."